rare disease day

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We Are All Zebras: How Rare Disease Is Shaping the Future of Healthcare

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Journey Into the Unknown: The Search for Rare Diagnosis

There are nearly 7,000 rare diseases affecting over 300 million people around the world. 80% of rare diseases are genetic, meaning most affect children. In the US, it can take over 7 years for a rare disease patient to receive a proper diagnosis.
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