Rare Diseases: More Common Than You Think

Rare Diseases More Common Than You Think What is a rare disease? In the US, a disease is defined as rare when it affects fewer than 200,000 Americans at any given time. <200,000 In Europe, a disease is defined as rare when it affects less than (1) in 2,000 people.? 7,000 = 300 million %3D There are approximately 7,000 rare diseases affecting over 300 million people worldwide. If all of the people with rare diseases lived in one country, it would be the third most populous country in the world.3 In the US alone, about 1 in 10 people suffers from a rare disease. ABOUT 95 80 50 50 PERCENT PERCENT PERCENT PERCENT of the people affected by rare diseases are children. of rare diseases do not have an of rare diseases are genetic. of rare diseases do not have a dedicated organization to provide support or conduct research. FDA-approved treatment. February 29, 2008 The first Rare Disease Day was held, organized by the European Organisation for Rare Diseases (EURORDIS).“ Since then, Rare Disease Day is observed on the last day of February each year. On Rare Disease Day, and leading up to this day, people around the world come together to raise awareness of rare diseases and the impact on those affected. Share this and spread the word! Together we can help to bring rare diseases to the forefront. Siren interactive Relationship marketing experts for rare disorder therapies sireninteractive.com Blog: sirensong.sireninteractive.com facebook.com/sireninteractivecorp f pinterest.com/sireninteractiv P youtube.com/sireninteractive 8 Sources: 1. National Organization for Rare Disorders. NORD website. http://www.rarediseases.org/rare-disease-information. Accessed February 6, 2013. 2. European Organisation for Rare Diseases. EURORDIS website. http://www.eurordis.org/about-rare-diseases. Accessed February 6, 2013. 3. The R.A.R.E. Project. The Global Genes Project website. http://www.globalgenes.org/rarefacts/. Accessed February 6, 2013. 4. European Organisation for Rare Diseases. Rare Disease Day website. http://www.rarediseaseday.org/article/why-rare-disease-day. Accessed February 6, 2013. Siren Interactive Corporation This work is licensed under a Creative Commons Attribution-NODerivs 3.0 Unported License (http://creativecommons.org/licenses/by-nd/3.0/deed.en_US). BY ND