Autism 101: What We Know Today

WHAT WE AUTISM KNOW TODAY Autism is a neurodevelopmental disorder with a strong genetic component, and it's growing fast. Despite increasing awareness and many proposed treatments, autism has enormous personal, family, and economic impact... WITH NO KNOWN CURE. RATE The most recent CDC report estimates the autism rate in children to be in 50 In a 2012 report it was in 88 With an annual growth rate of In 2007 it was 1 in 110 10%-17% In 2004 1 in 125 autism is the fastest growing developmental disability In 2002 1 in 150 In 2000 1 in 166 In the 1990's 1 in 300 In the 1980's it was 1 in 1,000- In the 1960's and 1970's it was 1 in 2,000- From its naming in 1943 to the 1960's it was 1 in 3,000- Autism is An estimated 5x 2 million more prevalent in boys than in girls *=2M people in America have autism COST Individual Cost Per Lifetime Total Societal Cost Per Year $3.9 $3 2012 $126 MILLION BILLION PER LIFETIME PER YEAR $35 MILLION 2007 PER LIFETIME BILLION DIRECT MEDICAL CARE - Physician and other professional services - Hospital and emergency department services - Drugs - Equipment and supplies - Medically related travel and time costs 10% Autism is usually thought of as a childhood disorder, but its costs can be felt DIRECT NON-MEDICAL CARE 30% well into adulthood. - Special education - Transportation - Child care and baby sitting - Respite care Out-of-home placement - Home and vehicle modifications 60% TOTAL - Supported employment services INDIRECT COST Wages and benefits lost for those with ASD and their caregivers 21Yr 65Yr AGE THE SPECTRUM Autism Spectrum Disorder (ASD) is the new diagnosis encompassing four developmental disorders ATYPICAL AUTISM CDD Pervasive developmental disorder ASPERGER SYNDROME AUTISTIC DISORDER Childhood Disintegrative Disorder not otherwise specified (PDD-NOS) Normal skills are Some characteristics Similar to Autistic Disorder developed then some are are met while others except little impairment of lost between ages 2-10 are not. verbal communication meanpe IMPAIRED IMPAIRED IMPAIRED RESTRICTED INTERESTS REPETITIVE SOCIAL INTERACTION VERBAL COMMUNICATION NON-VERBAL COMMUNICATION INTERESTS EARLY SIGNS Most signs of mommy ba more juice ya ASD show up in the first year of life and are diagnosed by No Babbling or before age 1 pointing age 3-4. No single words by 16 months No two word phrase by age Johnny? No response to his/her own name Excessive lining up of toys and objects Loss of language or social skills Other common signs: About 20 to 30 % of children with an - Intellectual disability - Unusual sensory responses - Feeding difficulties/fads Sleep problems - Clumsiness ASD, develop epilepsy by the time they -Self-injurious behavior - Angry outbursts caused by change reach adulthood. Poor eye contact THE FAMILY DIVORCE 80% O RATE for families with an autistic child MARITAL STRESS LACK OF REST LACK OF CHILDCARE DIAGNOSTIC CHALLENGES LACK OF SERVICES FEELINGS OF REJECTION FEELINGS OF GUILT LOST EXPECTATIONS COPING WITH GRIEF DAD WORKS TO MAKE ENDS MEET MOM BECOMES THE AUTISM EXPERT NO TIME FOR THEMSELVES SIBLINGS OF ASD CHILDREN POSITIVE NEGATIVE BUILD MATURITY AND RESPONSIBILITY FEELINGS OF RESENTMENT PROUD OF ASD SIBLING'S ACHIEVEMENTS GUILTY OF THEIR OWN GOOD HEALTH STRONG SENSE OF LOYALTY FEAR OF "CATCHING" AUTISM DEVELOP TOLERANCE AND COMPASSION FEELINGS OF ANXIETY AND REJECTION 66 Having a child with Autism can mess with your head: You feel like you can move mountains for 99 them yet you're powerless at the same time. Stuart Duncan Author of the blog: Autism From a Father's Point of View TREATMENT EDUCATIONAL AND MEDICATION DIET BEHAVIORAL 50% of children with ASD are prescribed medication to help manage the symptoms. The most common drugs used for ASD include: Many parents turn to dietary supplements and elimination diets to help alleviate the symptoms of ASD. Some popular supplements include: There are many programs available that help educate and improve social behavior for children with ASD. They all share these key features: « EARLY INTERVENTION « PSYCHOACTIVE DRUGS « VITAMIN B6 + MAGNESIUM • INTENSE 25 HR/WEEK PROGRAM • ANTICONVULSANTS • DMG • LOW STUDENT/TEACHER RATIO • ANTIDEPRESSANTS • VITAMIN C - PARENTAL TRAINING • STIMULANTS • PROBIOTICS • PEER INTERACTION • ANTIPSYCHOTICS • OMEGA 3 FATTY ACIDS • ENVIRONMENTAL ADJUSTMENTS Few diets or dietary supplements are backed by scientific data. Only antipsychotics have proven effective. EXAMPLES OF PROGRAMS MOST USED ANTIPSYCHOTIC FOR ASD. ABA EXAMPLES OF DIETS Applied Behavior Analysis RISPERIDONE FDA approved for ASD, helps manage irritability, self-injury, aggression, and tantrums. GLUTEN AND CASEIN FREE SCERTS By-products of gluten and casein are thought to aggravate ASD. Social Communication Emotional Regulation Transactional Support SENSORY INTEGRATION DAN PLAY Uses compression vests, brushing, joint compression, etc. to calm the nervous system of autistic kids. Defeat Autism Now Play & Language for Autistic Youngsters DAN doctors stress nutrition and detoxification, often seeing mercury as a main culprit. BEST IMPROVEMENT IS SEEN WITH EARLY INTERVENTION In addressing behavior, sensory, and dietary issues, early treatment can improve brain function. SOURCES http://en.wikipedia.org/wiki/Autism_spectrum_disorder http://en.wikipedia.org/wiki/Autism http://en.wikipedia.org/wiki/Asperger_syndrome http://en.wikipedia.org/wiki/PDD-NOs http://en.wikipedia.org/wiki/Childhood_disintegrative_disorder http://en.wikipedia.org/wiki/Autism_therapies http://www.ninds.nih.gov/disorders/autism/detail_autism.htm http://autism.about.com/od/alternativetreatmens/f/dandoc.htm http://www.autism-society.org/about-autism/facts-and-statistics.html http://autismcollege.com/library/47/the-affects-of-autism-in-families-and-in-partner-relationships Aston, M. 2005 “Growing up in an Asperger Family." 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